New podcast: Developing an easy, accessible way to support young people with Crohn’s disease
en-GBde-DEes-ESfr-FR

New podcast: Developing an easy, accessible way to support young people with Crohn’s disease

17/05/2024 Aston University

  • Dr Cassie Screti is developing a new online support tool for young people with Crohn’s disease
  • World Inflammatory Bowel Disease Day takes place on 19 May every year
  • Dr Screti is seeking young people aged 13-17 and their families to test the online support tool.

Aston University’s Dr Cassie Screti joined the latest Aston Originals Health Matters podcast recorded for World Inflammatory Bowel Disease Day to discuss a new online tool to help young people better manage Crohn’s disease, a type of inflammatory bowel disease (IBD).

Crohn’s disease affects 10m people worldwide, and in the UK alone, 25,000 people receive a new diagnosis of Crohn’s disease annually. Crohn’s is one of the two major types of IBD, the other being ulcerative colitis.

World Inflammatory Bowel Disease takes place on 19 May every year to unite people worldwide with IBD, raise awareness and urge governments and healthcare professionals to take action.

Crohn’s disease most commonly causes inflammation of the intestinal tract, including pain, bloating and diarrhoea, but can also cause joint pain, eye inflammation and fatigue. Symptoms are often more severe in young people.

During her PhD research in the School of Psychology, Dr Screti discovered that there is very little support available to help young people manage their illness. Treatment plans are varied and complex and sticking to a medication regime whilst fitting in normal life, like sport, school and social activities, can be very difficult.

Dr Screti set about developing an online support tool to support and encourage young people, in a project funded by charity Crohn’s and Colitis UK.

ASSIST-IBD was developed with young people from the start, to ensure useability, usefulness and acceptability. Dr Screti and the team used a variety of creative methods to develop the tool with the young people and get them thinking in new ways, including Lego building blocks and plasticine. The teens came up with lots of new ideas.

Dr Screti said:

“The way ASSIST-IBD works is that it allows young people to tailor the programme to meet the needs of their treatment plan and by providing them with a plethora of support, whether that be written support, such as information or some fun quizzes to take part in, but also audio and visual support, such as short videos written and created by teens with IBD, some really great podcasts written and recorded by teens with IBD and also some soundbites with young adults who live with IBD. Young people are given so much support in each of the topics to help them set a goal to overcome a barrier that's stopping them from following their treatment plan.”

She is currently seeking more volunteers, aged 13 to 17, and their families to test ASSIST-IBD for 12 weeks and report back on what worked and what didn’t, and if they have any ideas for improvements. Visit the Crohn’s and Colitis UK webpage for more information about the project to develop the online tool, and potential volunteers should visit the Aston University webpage. The ASSIST-IBD team is active on Instagram, Facebook, TikTok, X and YouTube.

Listen to the full podcast on the Aston Originals YouTube channel.

17/05/2024 Aston University
Regions: Europe, United Kingdom
Keywords: Health, Well being, Medical, People in health research, Society, Psychology

Testimonials

For well over a decade, in my capacity as a researcher, broadcaster, and producer, I have relied heavily on Alphagalileo.
All of my work trips have been planned around stories that I've found on this site.
The under embargo section allows us to plan ahead and the news releases enable us to find key experts.
Going through the tailored daily updates is the best way to start the day. It's such a critical service for me and many of my colleagues.
Koula Bouloukos, Senior manager, Editorial & Production Underknown
We have used AlphaGalileo since its foundation but frankly we need it more than ever now to ensure our research news is heard across Europe, Asia and North America. As one of the UK’s leading research universities we want to continue to work with other outstanding researchers in Europe. AlphaGalileo helps us to continue to bring our research story to them and the rest of the world.
Peter Dunn, Director of Press and Media Relations at the University of Warwick
AlphaGalileo has helped us more than double our reach at SciDev.Net. The service has enabled our journalists around the world to reach the mainstream media with articles about the impact of science on people in low- and middle-income countries, leading to big increases in the number of SciDev.Net articles that have been republished.
Ben Deighton, SciDevNet

We Work Closely With...


  • BBC
  • The Times
  • National Geographic
  • The University of Edinburgh
  • University of Cambridge
Copyright 2024 by AlphaGalileo Terms Of Use Privacy Statement